Questions

Frequently Asked Questions 

 Below, we have tried to answer the most common questions visitors to this our Web site may have. If you find that your question is not answered on this page, please email us.

Remember for authoritative answers you must check with a Health Professional


Q1 Iíve got what?

    A condition not a disease. and itís either Coeliac, Celiac, Sprue or Dermatitis Herpetitformis. Donít worry about the disease part of the name thatís how it was identified along time ago. In the UK, the word disease helps sufferers because the National Health Service allows food to be prescribed to people with diseases But not conditions!

Q2 How many people are like me?

    Several  studies suggest that between 1 in 200 and 1 in  300 people of Northern European extraction have coeliac disease. Research shows that this may be as high as 1 in 122 individuals in Northern Ireland  There   is also evidence that suggests  that the incidence of coeliac disease in children is declining whilst in adults it is increasing!

Q3 How did I Catch it?

     You didnít itís not a disease remember! There is evidence of a genetic predisposition to developing it and that it can be triggered, in susceptible people, by an environmental event The introduction of gluten to the diet during weaning may have an influence.

    What is Gluten? see here

Q4 What happens if I eat gluten?

    The reaction may vary between suffers some feel fine for a while, others feel sick or may suffer diahorea.  Without a doubt you will become ill again! Ongoing  damage to the intestinal lining, due to the  presence of gluten, also increases the need for continuing tissue repair. This, in turn, substantially increases the risk of several  cancers of the intestine. The presence of gluten in the bloodstream also increases the likelihood of gluten sensitivity being manifested elsewhere than in the intestines, such as the skin (e.g. dermatitis herpetiformis) and rarely, the nervous system

Q5   What is the latest on the oats question?

    There was a Finnish study on patients with CD that had been eating oats.  The study  compared their intestinal biopsies after six months with CD patients on a  regular GF diet.  Note that in this case GF has a different  meaning, because they allow wheat starch as part of the GF diet  there. Codex Amlimentarius The  same percentage in both groups still had intestinal damage, and the two groups had similar symptoms.  There have also been a  couple of other studies in Sweden and Denmark, confirming these  findings.

    However, we need to consider a couple of things.  In the study  they used a batch of oats that was specifically grown for the study.  These oats were examined in the field and it was verified that there were no contaminating grains such as barley or wheat  also growing there.  These oats were then specially milled and specially stored for the study.  Finally, these oats were tested using the most sensitive methods available for any wheat contamination.

    So unless you can get a hold of a batch of oats as pure as that  used in the Finnish study, oats are probably not safe for coeliacs.

Q6  Can I drink Alcohol?

    No, not if it's beers or  lagers, because these come from a gluten  grain.  Rum, Brandy, Wines and Ciders are fine. Alcohol itself probably does not bring on the damage  associated with CD, and may even suppress some of the symptoms by  making you feel "good" (Drunk!). 

    Remember with spirits,  gluten should have been eliminated during distillation, but with malt whiskey the malt has been re-added and, the vodka you buy at the 'super' isn't the original type of vodka...unless you shop in Moscow and may well be a cheap grain type vodka. so take care.. be drink aware!

    PS. Certainly not if your a Kid !  

Q7 What is Lymphoma ?

    Lymphoma is one of the complications.  It is a cancer of the  lymphocytes, which are the same cells that attack gluten and your  body, causing the intestinal damage.  Those cells are growing and dividing at an accelerated rate to fight off the gluten, and then   something triggers one to turn into a lymphoma.  It is rare in   treated coeliacs, but it does happen.  It is like smoking and lung cancer; the longer you've stopped smoking the less chance you have of getting lung cancer.  The longer a coeliac has been GF with a  healed small intestine, the lower the chance of getting lymphoma.  After 20 years on a GF diet your chances of getting lymphoma are very small.  If a child is diagnosed with CD and sticks to a  lifelong GF diet, the odds of getting lymphoma are probably the  same as for the non-coeliac population.

Q8  Can you have dermatitis herpetiformis (DH) without having CD?

    If you have DH, then you have an intestinal sensitivity to gluten.   If you eat gluten, you will have some damage to your intestine.  That damage may become more significant as you get older.

Disclaimer:

The answers to questions posed here were found from the internet. No liability is assumed. Individuals should consult their Doctor or Dieticians

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